ABOUT WARRIOR U
ABOUT WARRIOR UNIVERSITY
Warrior University is an online, curriculum-based educational platform, powered by the patients and caregivers of the Sickle Cell Consortium. All current classes, presentations and workshops are classified into five warrior university pillars:
-
-
- Disease Education (ex. The Expert Patient Series)
- Community-Based Organization/Certified Community Advocate Training & Best Practices
- Workshop Training
- CBO Intro & Updates
- Medical/Scientific Research & Updates
- Legislation & Policy
- Warrior/Caregiver Life Skills
Pillar Six Coming Soon: Healthcare Provider Outreach & Education
-
- Healthcare Providers
- Healthcare Students
-
- Contact Us:
- Dominique Goodson – Warrior University Administrator
- Email: WarriorUniv@sicklecellconsortium.org
- SUPPORT WARRIOR UNIVERSITY
- DONATE – To support patient-powered educational resources. Earmark your donation to support a specific warrior university series.
- NEW SERIES – Do you have an idea for a topic or series that Warrior university should cover? Contact Dominique Goodson to share your ideas and begin working out the details.
- VOLUNTEER – Volunteers are always needed.
- Administrative
- Curriculum building
- Video streaming and editing
Although created, designed for (and by) the sickle cell patient/caregiver population, all classes in each educational series are open to the general public. Partners, individuals living with sickle cell disease, and caregivers may choose to enroll for warrior university certification. Certification of certain courses will be required to join the Consortium Speakers Bureau. Other courses are required for independent patient/caregiver Consortium credentialing.
EVENT CREATIONS, HOSTING, AND MANAGEMENT
Warrior University is bringing a course on hosting events from beginning to end. This course will include classes on in-person events as well as virtual events. This course is only available as a pre-record. You can watch the entire course on the Warrior University website.
Visualize Your Event: Virtual vs In-Person
October 6, 2022 | 7:00 PM EST | Dr. Lakiea Bailey. Sharonda Sikes, Janeen Greene
This class will help participants to think about what to consider when deciding to host an in-person vs a virtual event. We will share lessons learned from booking your venue to choosing a virtual platform, things to consider when working with SCD warriors, and venue/platform contract negotiations.
Developing Your Prospectus and Budget
October 11, 2022 | 7:00 PM EST | Lakiea Bailey, Doris Bailey, Sharonda Sikes
This class will provide a template for creating an event prospectus and outlining your event budget. This class will include things to consider, and how to ensure your event has enough funds to be executed effectively.
Proposal Submission & Compliance
October 18, 2022 | 7:00 PM EST | Doris Bailey, Lakiea Bailey
This class will focus on how to navigate online sponsorship portals. The class will take participants through the process starting from developing a prospectus to submitting it in a portal.
Event Planning & Management: In-Person
October 20, 2022 | 7:00 PM EST | Lakiea Bailey, Sharonda Sikes, Dominique Goodson
This class will focus on the details required to effectively plan and manage an in-person event. From scholarships to schedules, we will share the tips, tricks, and pitfalls to avoid for a successful in-person event.
Event Planning & Management: Virtual
October 25, 2022 | 7:00 PM EST | Lakiea Bailey, Sharonda Sikes, Dominique Goodson
This class will focus on the details required to effectively plan and manage a virtual event. From virtual platforms to technical support, we will share the tips, tricks, and pitfalls to avoid for a successful virtual event.
Event Marketing and Branding
October 27, 2022 | 7:00 PM EST | Sharonda Sikes, Lakiea Bailey
When planning an event, it is important to ensure that your marketing is effective and that the branding is cohesive and recognizable. Join expert Sharonda Sikes, as she dives into the tricks of the trade
Financial Reconciliation and wrap-up
November 1, 2022 | 7:00 PM EST | Doris Bailey
At the end of your event, you will need to reconcile your budget and expenses. Join accountant and consortium Chief Financial Officer Doris Bailey as she outlines what you need to know to reconcile your books and keep the IRS happy.
Execute the Event: Bring Your Vision to Life
November 3, 2022 | 7:00 PM EST | Sickle Cell Consortium Staff
This class will focus on planning, event management, volunteers, gathering your team, and much more to make sure your event is successful. This class will explain what you need to make your event a success whether in-person or virtual. Warrior University is proud to have the Consortium staff presenting on such an important topic.
Each EDUCATIONAL SERIES is part of one of the four Warrior University PILLARS.
- Disease Education – This pillar focuses on existing sickle cell disease education. Classes will include courses and workshops as part of the Expert Patient Series. Advances level courses will require completion of prerequisite courses (or prerequisite exemption approval).
- Community-Based Organization/Certified Advocate Training & Best Practices – This pilliar encompases classes and workshops designed to provide training in expert advocacy and non-profit best practices. Courses include public speaking, grant writing, fundraising, etc.
- Research, Legislation & Policy – This pillar contains courses designed to keep sickle cell patients and caregivers up-to-date on the legislative and administrative policies of importance to the sickle cell community.
- Life Skills – This pillar will include courses designed to ensure that rare disease patients have the knowledge and skill set to live their best life.
SPRING 2019
RedHott Project Webinar series: overview
The Sickle Cell Consortium is excited to present the RedHott Project Webinar series as part of Warrior University. The RedHott Project Webinar series was developed to educate individuals on the foundation for important blood transfusion terminology, how to avoid blood transfusion complications, and the critical need for increasing minority blood donations.
This series of Blood Transfusions: What You Need to Know and Do learning sessions delivered via online webinar, has been designed to provide a basic body of knowledge related to Sickle Cell Disease (SCD). Sickle Cell Disease is a chronic condition that causes red blood cells to form a sickle shape. These sickled cells block blood vessels and confine oxygen delivery throughout the body. This can cause people with SCD to suffer from organ failure and chronic pain crises. Blood transfusions are an important therapy for people suffering from the effects of SCD – but repeated transfusions can have harmful risks.
Blood Transfusions: What You Need to Know and Do
The learning series in Blood Transfusions: What You Need to Know and Do are designed with a basic understanding of SCD. These sessions will help attendees learn how to take the hands-on knowledge gained and use it to make rational and informed decisions on whether to receive blood transfusions or decline until another time.
Session 1: Blood Transfusions: How, Why, and When?
February 25, 2019| 6:30 PM EST | REGISTER | Dr. Jim Eckman | RECORDING
- Understand the real risks and benefits of being transfused.
- Understand the important complications of blood transfusion
- Be able to list the medical history that should be tracked with each blood transfusion.
- State why they should keep track of every transfusion: When, Where, Why, and How much?
Session 2: Keeping it Safe: Blood Matching
February 27, 2019| 6:30 PM EST | REGISTER | Dr. Jim Eckman | RECORDING
This session will focus on the participants learning how to keep detailed records of their transfusion history, comprehending the potential hazards and benefits, and how to prevent and treat medical issues related to blood transfusions.
- Describe their role in preventing blood transfusion complications.
- Understand why they need to follow instructions for treating complications.
Session 3: Keeping it Safe: Iron Overload
March 4, 2019| 6:30 PM EST | REGISTER | Dr. Jim Eckman | RECORDING
This session will focus on the participants learning about serious blood transfusion complications and their effect on the body, as well as being able to provide an accurate account of their history with blood transfusions.
- Describe iron overload and alloimmunization as blood transfusion complications.
- State methods to prevent iron overload and alloimmunization.
Session 4: African-American Blood Donations: Why are they important?
March 6, 2019 | 6:30 PM EST | REGISTER | Ashley Singleton | RECORDING COMING SOON
This session will focus on the participants learning the significance of minority blood donations and how to access education on effective procedures to increase minorities to donate blood.
- Explain the importance of minority blood donations.
- Access best practices to increase minority blood donations.
Session 5: Let’s Talk: Patient-Provider Communication
March 11, 2019| 6:30 PM EST | REGISTER | Dr. Raymona Lawrence | RECORDING
This session will focus on the participants learning to discern and advocate their needs when it comes to conveying to medical staff regarding transfusion requirements.
- Differentiate when a transfusion is necessary and when it is not necessary.
- Effectively communicate with medical providers about blood transfusion related needs.
Class 1 – Why get involved with FDA?
- Regular and sustained patient advocacy with the FDA is important because:
- Helps FDA understand the impact of sickle cell
- Used in the approval decisions to balance the benefits and risks of new therapies
- FDA wants and solicits patient input into their processes.
Class 2 – Building an advocacy resume
- What is an advocacy resume
- Why is it important to have an advocacy resume
- How do I build an effective advocacy resume
Class 3 – How to get involved with FDA?
- There are many ways the FDA solicits input from patients including product specific and context setting opportunities.
- Key ways to get involved include: acting as a patient representative, participating in listening sessions and focus group sessions.
- Helpful tips make it easier to take next steps and engage with the FDA.
This 2-Day in-person training series will be held immediately after the 4th Annual Leadership Summit at the DoubleTree by Hilton – Buckhead/Atlanta. March 17 & 18, 2019
We are pleased to announce Dr. Chic Smith, Asst. Dean at U.Va., (private/philanthropic grants), and Funmi Makinde, from the Office of Minority Health Resource Center, (government grants), will facilitate a Special 2-Day Grant Training series of Warrior University on March 17 and 18, immediately following the Leadership Summit.
Participants are invited to submit a draft Letter of Intent/Letter of Inquiry to be reviewed during a MOCK review session by Consortium reviewers. We will use the Eugene Washington PCORI Engagement Award for this purpose. To participate, visit the Eugene Engagement Award guidelines to familiarize yourself with the details of this program. Submit your mock LOI to Dominique Goodson at intern@sicklecellconsortium.org no later than Friday, March 8 at 4:59 pm EST. Your LOI will be reviewed by individuals experienced in LOI and grant review. Although these will not be the same individuals who review for PCORI, we encourage you to take this process very seriously. PCORI is accepting actual LOIs for this award (due May 31, 2019). Participating in the training DOES NOT guarantee that you will be awarded a grant by PCORI or any other granting organization. This training has been created to help partners become familiar with grant writing and to prepare to submit for grants in the future.
Session 1: Introduction to Private Foundation/Philanthropic Grant Writing
Dr. Chic Smith | March 18 | Leadership Summit
- Locating Private/Philanthropic Grant Resources
- Identifying partnerships
- Grant cycles
Session 2: The VDC (Vision, Design, Capacity) Workshop – Improving the Skills of Technical Writers
Funmi Makinde, MPH, CHES | Elton Naswood | March 19 | Leadership Summit
The VDC (Vision, Design and Capacity) Workshops have been conducted in a variety of communities across the United States since 2002. The workshops have improved the writing skills of participants and increased their understanding of the components and usual requirements of completing successful grant applications. The trainings were initially offered to community-based organizations and have since expanded to address research funding at institutions of higher education in the United States.
- Participants are sequentially engaged through lectures and interactive exercises, over 2 days.
- Review principles of technical writing, practice strategies to relay information in grant applications
- Share the tips and standards Grant Reviewers use as they screen applications going to the Funder.
Session 3: Navigating Online Grant Portals
Dr. Lakiea Bailey | March 19 | Leadership Summit
- A review of online pharmaceutical grant portals
- Step by step review of submitting funding proposals via online portalsCreating successful RFFs (Request for Funds)
GENE EDITING, VECTORS, AND SICKLE CELL DISEASE
A discussion on Gene Editing, vectors, and a breakdown and explanation of the HIV comment from the 60 Minutes interview on sickle cell disease.
This class is part one of a continuing webinar series (coming Fall 2019) on Gene Editing and Gene Therapy. Class one with Dr. Julie Kanter focuses on gene editing, vectors, and an explanation of the HIV comment made during the 60 Minutes interview on sickle cell disease.
SUMMER 2019
EMBRACE sickle cell knowledge and become a patient expert.
Patient Education Webinars on Warrior University
Class Schedule – Tuesdays and Thursdays at 6:30 pm EST
Tues 7/2 – Diagnosis and treatment of acute chest syndrome – Dr. James Eckman
Tues 7/9 – Hydroxyurea in pediatric SCD – Dr. Peter Lane
Thur 7/11 – Hydroxyurea for treatment of adult SCD – James Eckman
Tues. 7/16 – Diagnosis and treatment of Avascular Necrosis – Dr. James Eckman
Thur. 7/18 – Chronic pulmonary complications in people with SCD – (PENDING)
Tues 7/30 -Stroke and other neurological complications in people with SCD (PENDING)
Thur. 8/1 – Healthcare maintenance for children with sickle cell disease (PENDING)
FALL 2019
Coming Soon
FALL 2022
EVENT CREATIONS, HOSTING, AND MANAGEMENT
Warrior University is bringing a course on hosting events from beginning to end. This course will include classes on in-person events as well as virtual events. This course is only available as a pre-record. You can watch the entire course on the Warrior University website.
Visualize Your Event: Virtual vs In-Person
October 6, 2022 | 7:00 PM EST | Dr. Lakiea Bailey. Sharonda Sikes, Janeen Greene
This class will help participants to think about what to consider when deciding to host an in-person vs a virtual event. We will share lessons learned from booking your venue to choosing a virtual platform, things to consider when working with SCD warriors, and venue/platform contract negotiations.
Developing Your Prospectus and Budget
October 11, 2022 | 7:00 PM EST | Lakiea Bailey, Doris Bailey, Sharonda Sikes
This class will provide a template for creating an event prospectus and outlining your event budget. This class will include things to consider, and how to ensure your event has enough funds to be executed effectively.
Proposal Submission & Compliance
October 18, 2022 | 7:00 PM EST | Doris Bailey, Lakiea Bailey
This class will focus on how to navigate online sponsorship portals. The class will take participants through the process starting from developing a prospectus to submitting it in a portal.
Event Planning & Management: In-Person
October 20, 2022 | 7:00 PM EST | Lakiea Bailey, Sharonda Sikes, Dominique Goodson
This class will focus on the details required to effectively plan and manage an in-person event. From scholarships to schedules, we will share the tips, tricks, and pitfalls to avoid for a successful in-person event.
Event Planning & Management: Virtual
October 25, 2022 | 7:00 PM EST | Lakiea Bailey, Sharonda Sikes, Dominique Goodson
This class will focus on the details required to effectively plan and manage a virtual event. From virtual platforms to technical support, we will share the tips, tricks, and pitfalls to avoid for a successful virtual event.
Event Marketing and Branding
October 27, 2022 | 7:00 PM EST | Sharonda Sikes, Lakiea Bailey
When planning an event, it is important to ensure that your marketing is effective and that the branding is cohesive and recognizable. Join expert Sharonda Sikes, as she dives into the tricks of the trade
Financial Reconciliation and wrap-up
November 1, 2022 | 7:00 PM EST | Doris Bailey
At the end of your event, you will need to reconcile your budget and expenses. Join accountant and consortium Chief Financial Officer Doris Bailey as she outlines what you need to know to reconcile your books and keep the IRS happy.
Execute the Event: Bring Your Vision to Life
November 3, 2022 | 7:00 PM EST | Sickle Cell Consortium Staff
This class will focus on planning, event management, volunteers, gathering your team, and much more to make sure your event is successful. This class will explain what you need to make your event a success whether in-person or virtual. Warrior University is proud to have the Consortium staff presenting on such an important topic.
CURRENT COURSE SCHEDULE
Register Below
EVENT CREATIONS, HOSTING, AND MANAGEMENT
Warrior University is bringing a course on hosting events from beginning to end. This course will include classes on in-person events as well as virtual events. This course is only available as a pre-record. You can watch the entire course on the Warrior University website.
Visualize Your Event: Virtual vs In-Person
October 6, 2022 | 7:00 PM EST | Dr. Lakiea Bailey. Sharonda Sikes, Janeen Greene
This class will help participants to think about what to consider when deciding to host an in-person vs a virtual event. We will share lessons learned from booking your venue to choosing a virtual platform, things to consider when working with SCD warriors, and venue/platform contract negotiations.
Developing Your Prospectus and Budget
October 11, 2022 | 7:00 PM EST | Lakiea Bailey, Doris Bailey, Sharonda Sikes
This class will provide a template for creating an event prospectus and outlining your event budget. This class will include things to consider, and how to ensure your event has enough funds to be executed effectively.
Proposal Submission & Compliance
October 18, 2022 | 7:00 PM EST | Doris Bailey, Lakiea Bailey
This class will focus on how to navigate online sponsorship portals. The class will take participants through the process starting from developing a prospectus to submitting it in a portal.
Event Planning & Management: In-Person
October 20, 2022 | 7:00 PM EST | Lakiea Bailey, Sharonda Sikes, Dominique Goodson
This class will focus on the details required to effectively plan and manage an in-person event. From scholarships to schedules, we will share the tips, tricks, and pitfalls to avoid for a successful in-person event.
Event Planning & Management: Virtual
October 25, 2022 | 7:00 PM EST | Lakiea Bailey, Sharonda Sikes, Dominique Goodson
This class will focus on the details required to effectively plan and manage a virtual event. From virtual platforms to technical support, we will share the tips, tricks, and pitfalls to avoid for a successful virtual event.
Event Marketing and Branding
October 27, 2022 | 7:00 PM EST | Sharonda Sikes, Lakiea Bailey
When planning an event, it is important to ensure that your marketing is effective and that the branding is cohesive and recognizable. Join expert Sharonda Sikes, as she dives into the tricks of the trade
Financial Reconciliation and wrap-up
November 1, 2022 | 7:00 PM EST | Doris Bailey
At the end of your event, you will need to reconcile your budget and expenses. Join accountant and consortium Chief Financial Officer Doris Bailey as she outlines what you need to know to reconcile your books and keep the IRS happy.
Execute the Event: Bring Your Vision to Life
November 3, 2022 | 7:00 PM EST | Sickle Cell Consortium Staff
This class will focus on planning, event management, volunteers, gathering your team, and much more to make sure your event is successful. This class will explain what you need to make your event a success whether in-person or virtual. Warrior University is proud to have the Consortium staff presenting on such an important topic.
DOWNLOAD FALL 2018 COURSE CATALOG
SPRING 2018
Social Media Series
Overview: This 6-week series provides an instructional foundation on the most frequently used social media platforms and the role of social media as a tool for community engagement and to improve healthcare outcomes.
Curriculum: https://
More information & Recording: https://
FALL 2018
COMPASS: Guiding the Direction of Community Engaged Sickle Cell Disease Research
Overview: Direct patient engagement to identify and define comparative effectiveness research questions of most value to the sickle cell community
Curriculum:
More information & Recording: Click here to see the presentation
SPRING 2019
Download the Spring 2019 Course Catalog here.
Blood Transfusion: What You Need to Know and Do
Curriculum
FDA Patient Engagement
Curriculum
Grant Writing Intensive
Curriculum
SUMMER 2019
Education and Mentoring to BRing Access to CarE for SCD (EMBRACE)
A sickle cell Expert Patient series in collaboration with HRSA EMBRACE team.
Register Here
Join the Class Here
CLASS SCHEDULE
Tuesdays and Thursdays at 6:30 pm EST
Tues 7/2 Hydroxyurea of treatment of adult SCD – Dr. James Eckman
Tues 7/9 Hydroxyurea in pediatric SCD – Dr. Peter Lane
Thur 7/11 Diagnosis and treatment of acute chest syndrome – James Eckman
Tues. 7/16 Diagnosis and treatment of Avascular Necrosis – Dr. James Eckman
Thur. 7/18 Chronic pulmonary complications in SCD – Liz Kling (PENDING)
Tues 7/30 Stroke and other neurological complications – Ross Fasano (PENDING)
Thur. 8/1 Pediatric Healthcare Maintenance – (PENDING)
WATCH THE RECORDINGS:
- Blood Transfusions in Sickle Cell Disease: How, When, Why
- Blood Transfusions: Keeping It Safe – Blood Matching
- Diagnosis and treatment of acute chest syndrome
- Hydroxyurea in pediatric SCD
- Hydroxyurea for treatment of adult SCD
- Diagnosis and treatment of Avascular Necrosis
- Chronic pulmonary complications in people with SCD
- Stroke and other neurological complications in people with SCD
- Healthcare maintenance for children with sickle cell disease